UpdateMission Accomplished

Burning River 50 · July 25, 2026 · Cuyahoga Valley

On the Trail
to Recovery

Daniel Barber is running 50 miles for the Acoustic Neuroma Association — and for those who seek positivity amidst an uncertain journey...

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Funds Raised

$0

of $5,000 goal

All donations go directly to the Acoustic Neuroma Association via Every.org

The Story

It started in January 2024.

It began with a sudden bout of hearing loss in my right ear. It did go away — but the reason behind it didn't. I was diagnosed with an acoustic neuroma, a rare, benign tumor growing on the nerve that connects the ear to the brain.

At first, I was dumbfounded. For several months I wrestled with anxiety, learning about treatment options and sitting with all the what-ifs. My wife was just finishing her ENT residency — she had studied this from textbooks, sat with patients navigating it, and suddenly here it was, at home, in our life. We were both shaken in ways neither of us expected.

MRI scan, coronal view MRI scan, axial view

An acoustic neuroma grows slowly for most people. Mine didn't. At five to ten times the typical rate, surgery became the clear path forward. On January 5, 2026, Drs. Sarah Mowry and Nicholas Bambakidis at University Hospitals skillfully removed my tumor, taking tremendous care of me and my family. I ultimately lost hearing on my right side in the process. We knew that going in, and it was the best outcome we could have hoped for.

Post-surgical scar, healing

Even with my wife's training and network, I felt lost in ways that medical access couldn't fully reach. The Acoustic Neuroma Association met me there. A packet arrived at my home. Online resources. And a repository of stories from people who had been exactly where I was — stories that brought real hope when I needed it most.

"Tales of metamorphosis... into alternative states of being, other forms of life, no less human for being so different."
Oliver Sacks

The Miles

One step at a time. Then another fifty miles of them.

The body's ability to adapt is extraordinary, and the mind is stronger than we give it credit for. Since surgery I've run a trail half marathon at Mohican and the Cleveland Marathon — and on July 25th I'll toe the line at Burning River, my first 50-mile ultramarathon, through the Cuyahoga Valley.

0.0

Surgery
Jan 5, 2026

13.1

Mohican Trail Half Marathon
April 2026

26.2

Cleveland Marathon
May 2026

50

Burning River Ultra
July 25, 2026

None of these miles happened alone. Every long run had someone next to me — pacing, hydrating, talking me through the parts where my legs wanted to quit before my head did.

Mohican Trail Half Marathon finish, with a friend Cleveland Marathon finish, with my wife Training run on the trail with Drew

Mohican · Cleveland · training miles with Drew — couldn't have done any of it solo.

Burning River 50-Miler marked on the calendar

July 25th is circled in orange on the kitchen calendar. Fifty miles through Cuyahoga Valley, the longest distance I've ever asked my body to cover — and the best reason I've found yet to ask for your support.

"Ask not what disease the person has, but rather what person the disease has."
William Osler

Support the path for those with AN.

Every dollar goes directly to the Acoustic Neuroma Association to fund research and support others navigating this diagnosis. Thank you for taking a moment to read my story — and for considering a donation to an organization that was there for me when I needed it most.

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Race Day

Mission accomplished.

Thank you to everyone who supported this journey — whether through a donation of time, money, or mental support. Every kind word, shared mile, and generous gift helped carry me to the finish.

Running through a sunny meadow during the Burning River 50 Holding a handmade first ultra marathon sign on the race course Smiling after finishing the Burning River 50 with a finisher medal Burning River 50 activity summary showing the completed 51.2-mile course

I could not have done this without you. Thank you.